National Support Organisations
Below are some national support groups that you may find useful.
The Stop Abuse Together website brings together advice and resources to help you keep the children in your life safe. Visit Stop Abuse Together (external link).
CHADD provides information, support and advocacy for children and adults with Attention Deficit Disorder (ADHD). Visit CHADD (external link).
Sensory Direct is a seller of sensory toys and equipment. Visit Sensory Direct (external link).
The National Autistic Society provides support, guidance and advice for Autistic people. Visit the National Autistic Society (external link).
The Childhood Bereavement Network is the hub for those supporting bereaved children and young people. Visit the Childhood Bereavement Network (external link).
Bowel and Bladder
ERIC - Tackling the challenges of bowel and bladder conditions together, for young lives free of shame and fear. Visit the ERIC website (external link).
Children's Continence Service is available for children and young people aged 5 to 18 years old, registered with a Sutton GP, who experience bladder and/or bowel difficulties including daytime wetting/soiling. Referral to the service is via your child's GP or another health professional (e.g School Nurse/Health Visitor). Visit the Sutton health and care continence service (external site).
Cerebra is the national charity helping children with brain conditions and their families discover a better life together. Visit Cerebra (external link).
The Children's Trust is a charity for children with brain injury. They deliver rehabilitation, education and community services through skilled teams who work with children and young people, and their families. Visit The Children's Trust (external link).
The Challenging Behaviour Foundation is a charity focussed on the needs of people with severe learning disabilities whose behaviour challenge, and their families. Visit the Challenging Behaviour Foundation (external link).
Contact Listening Ear
Contact Listening Ear is a service for parents and carers who might be struggling emotionally and looking for strategies to help them cope. It also provides support for parents/carers who need to talk to someone who understands the extra challenges that they face and who can point them in the right direction to get the support they need. Visit Contact Listening Ear (external link).
The RNID is here to make life fully inclusive for deaf people and those with hearing loss or tinnitus. Visit RNID (external site).
The Down Syndrome Association is committed to improving quality of life for people with Down's syndrome, promoting their right to be included on a full and equal basis with others. Visit Down Syndrome Association (external link).
Early years Workshops
Contact runs workshops covering topics such as Anxiety, sleep and Toilet Training for parents of children aged 0-5. Find out about Contact's Early Years Workshops (external link).
Beat is the UK’s eating disorder charity. Founded in 1989 as the Eating Disorders Association, their mission is to end the pain and suffering caused by eating disorders. Visit Beat (external link).
Epilepsy Action is a community of people committed to a better life for everyone affected by epilepsy. Visit Epilepsy Action (external link).
Young Epilepsy provides world class diagnosis, assessment and rehabilitation for children and young people with epilepsy. They also undertake research into the condition and how it can be treated. Visit Young Epilepsy (external link).
Epilepsy Action holds a coffee and chat club in Kingston. Learn more about Epilepsy Action Support (external link).
Foetal Alcohol Spectrum Disorders
The National Organisation for FASD provides support to people affected by Foetal Alcohol Spectrum Disorders (FASD), their families and communities; campaigns to raise public awareness; and promotes relevant policies and practices. Visit the National Organisation for FASD (external link).
The Fragile X Society aims to improve the lives of those affected by Fragile X and associated conditions by providing information and continued support to families and professionals they work with. Visit the Fragile X Society (external link).
Crisis is the UK national charity for people experiencing homelessness. The charity offers year-round education, employment, housing and well-being services from centres across the UK. Visit Crisis website (external link).
Internet Matters offers expert support and practical tips to help children benefit from connected technology and the internet safely and smartly. Visit Internet Matters (external link).
Thinkuknow is the education programme from NCA-CEOP, a UK organisation which protects children both online and offline. Explore one of the six Thinkuknow websites for advice about staying safe when you're on a phone, tablet or computer. Visit Thinkuknow (external link).
Mencap is a UK charity for people with a learning disabilty. They provide a helpline and other services. Visit Mencap (external link).
Life Limiting Illness
React - Rapid Effective Assistance for Children with potentially Terminal illness is a dynamic charity working to improve the quality of life for children with life-limiting illnesses living in financially disadvantaged households throughout the UK. Visit the REACT website (external link).
Samaritans - Every 10 seconds, Samaritans responds to a call for help. No judgement. No pressure. We're here for anyone who needs someone. Visit the Samaritans website (external link).
Shout has trained volunteers to listen and support you to get to a calmer and safe place. Text 'Shout' to 85258. Visit 'give us a shout' (external link).
Good Thinking supports Londoners to look after their mental health and wellbeing in a way that works for them. Available 24/7 on any device and completely anonymous, Good Thinking provides a range of resources to help Londoners improve their mental wellbeing, including free NHS-approved apps, articles, blogs, podcasts, self-assessments, videos and workbooks. Visit the Good Thinking website (external link).
Muscular Dystrophy UK offers advice and support. Visit the Muscular Dystrophy UK website (external link).
The Brain Charity offers emotional support, practical help and social activities to anyone with a neurological condition and to their family, friends and carers. National support for all neurological conditions. Visit the Brain Charity (external link).
Scope is a disabiilty equality charity that offers practical information and emotional support. Visit Scope (external link).
IPSEA's volunteers regularly advise and support parents and carers whose school-aged children are unable to access education because of anxiety or similar difficulties - very often associated with the child's SEN. Visit IPSEA (external link).
- Scope’s free “Sleep Right” service a free online, and telephone support service, that helps parents and carers of disabled children to improve their child's sleep.
- Scope Sleep Right Podcasts cover topics such as relaxation, bedtime anxiety, sleep foods and more;
- The sleep charity’s Early Help Sleep booklet;
- Contact’s “Helping your Child to Sleep” booklet provides useful guidance; and.
- Scope “Help your disabled child Sleep” web page provides guidance.
Speech and Language
AFASIC offers a helpline for parents concerned about their child's Speech, Language and Communication. Visit AFASIC (external link).
The Tuberous Sclerosis offers advise and support for those affected by TSC. Visit the TSC website (external link).
Shine Charity provides specialist advice and support for spina bifida and hydrocephalus. Visit the Shine website (external link).
The RNIB offers help and support for blind and partially sighted people. Visit RNIB (external link).
The Partially Sighted Society offers specialist services that focus on helping you to make the best use of your remaining vision and their friendly team are at the end of a phone if you or someone you know is affected by sight loss. Visit The Partially Sighted Society (external link).
The Partially Sighted Society
Specialist services that focus on helping you to make the best use of your remaining vision and their friendly team are at the end of a phone if you or someone you know is affected by sight loss. Visit The Partially Sighted Society (external link).
Will and Trusts
Mencap has information on some of the most common questions regarding Wills and Trusts for people with a learning disability. Visit Wills and Trusts - frequently asked questions (external link).